2023

Join Lorenzo’s House Tomorrow at the AFTD 2023 Conference!

The AFTD 2023 Education Conference is being held tomorrow at the Marriott St. Louis Grand. This is an opportunity to connect with people who understand the journey of Frontotemporal dementia, learn about available resources and supports, and engage with experts to gain insight on the latest in FTD research and approaches to care. If you can’t attend in person, you can

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ICRN Members Attending Association for Frontotemporal Degeneration Conference, May 5

The AFTD 2023 Education Conference is coming to the Marriott St. Louis Grand on May 5, 2023! Join in for this unique opportunity to connect with people who understand the journey, learn about available resources and supports, and engage with experts to gain insight on the latest in FTD research and approaches to care. Darby Morhardt, PhD, Research Professor in the

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My Worry Dolls

Susan Frick | 02 May 2023 Recently, I went to Guatemala on a mission trip with my church. The five days were filled with amazing experiences and stories to share once home. I also arrived home with a pack of Worry Dolls, which show the beautifully woven skirts of the area. Probably these aren’t new to some,

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Caring for Someone With a Frontotemporal Disorder

People living with frontotemporal disorders (FTD), sometimes called frontotemporal dementia, can have a range of symptoms, including unusual behaviors, emotional problems, trouble communicating, and difficulty walking. There is no cure for FTD and no way to slow it down or prevent it. However, there are ways to help manage symptoms. Consider these strategies to help

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Illinois Department of Public Health Launches The Healthy Brain Newsletter

The Illinois Department of Public Health’s Division of Chronic Disease is pleased to announce the creation of “The Healthy Brain Newsletter.” The goal of this newsletter is to deliver trusted information and education about healthy cognitive aging, ways to support brain health, dementia caregiver support, and other relevant highlights including community resources and events throughout

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Volunteers Needed for Studies to Advance Dementia Research

Interested in volunteering for research on Alzheimer’s disease, related dementias, and cognitive health? Learn about new and featured studies below or search for clinical trials and studies near you with the Alzheimers.gov Clinical Trials Finder. New and featured studies Click on the trial name for details and contact information. Caregiving Cognitive Training Daily Functioning Exercise and Supplements

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Questions About End-of-Life Care for a Person with Dementia

Dementia can present special end-of-life care challenges, in part because the disease progression is so unpredictable. When someone has dementia, it’s important to understand available end-of-life medical options and weigh the benefits, risks, and side effects of any treatment. You might ask the health care team: Explore more questions about end-of-life care for a person

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Video Categories

Alzheimer’s Disease and Dementia
Dementia Caregivers
Dementia Friends/Dementia Friendly
Exercise and Physical Activity
For Professionals (The Brain Trust Project Podcast)
Healthy Aging
Home Safety/Fall Prevention
Living with Dementia
Maintaining Quality of Life
Social Isolation
Support Groups (Without Warning and Toolkit Project)
Videos in Spanish (Vídeos en Español)
Why Participate in Dementia Research
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