#WordsOfComfort

Finding a way to stay connected during this time of stress and social distancing.

During the spread of COVID-19 and the need for social distancing, we are all feeling more lonely and disconnected. If you are living with or caring for someone with dementia that feeling is even stronger. Both family members and healthcare staff are feeling this stress too.

We began #WordsOfComfort to bring us together and share words of support, advice and comfort as we move through this time. We hope these words of comfort help each of us to know that we are not alone.

Roly has been with our family for two years. He does so much to help in the care of my husband Kevin and is part of our family. This shirt says it all!

“Some people live their whole life and wonder if they have ever made a difference in the world but a Caregiver doesn’t have that problem.”

The support group meetings were a life-line to me as I was navigating the care of my late husband, who had early-onset Alzheimer’s. I remember another spouse saying her husband had recently gone on a special day-trip for Alzheimer’s patients. The spouse said, “He doesn’t remember the trip, but he had a good time.” I was completely baffled. Why did he bother to go on a trip that he did not remember? I soon realized that any enjoyable experience contributes to our well-being and is therefore beneficial. It’s like a good night’s sleep. We don’t remember it, but it does us good.

When I think of the caregivers that I’ve come to know and love, I am blown away by the sheer force of their devotion, advocacy and unconditional love for their companions, most often the spouse. I think of how they are taking those marriage vows to heart while at the same time experiencing such profound sadness and loss.