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Inform the National Participation Strategy in Alzheimer’s Research

As part of the National Plan to Address Alzheimer’s Disease, studies are being funded to test treatments, interventions and services for people with Alzheimer’s and their families. Yet, efforts to engage participants in this research are not on pace with the need of volunteers. This is a leading challenge in our progress.  Your ideas are needed about how to help solve this problem.

To boost recruitment, the National Institute on Aging (NIA), in collaboration with the Alzheimer’s Association, has been exploring how to expand and diversify participation in clinical studies for Alzheimer’s and other dementias. To this end, these organizations are engaging a wide range of stakeholders — researchers, advocacy organizations and others — to develop a comprehensive National Strategy for Alzheimer’s Disease Clinical Research Recruitment and Participation.

Now we need your help. NIA and the Alzheimer’s Association welcome your ideas and views about how to overcome barriers and optimize participation in Alzheimer’s research. We seek broad input from diverse stakeholders, including clinicians, individuals with dementia, family members, caregivers, researchers, site coordinators and others.

We’re looking for ideas on the following topics:

Please visit the IdeaScale community website to participate.

You are encouraged to browse ideas already submitted, comment, vote for your favorites and submit your own ideas. To submit an idea, please click on the “Submit New Idea” button in red on the top right-hand side of the navigation sidebar. You’ll need to register as a member of the community before you submit your idea. You will then be asked to add a title and choose a new idea category. You will also have the option to add tags to the idea. To cast a vote on an idea, simply click the up or down arrow to the right of the idea title/description. To add a comment, click in the box that is below the idea.

The public comment period on the ideas is planned to run through April 15.

Participation and comments from a diverse array of perspectives will ensure the National Strategy for Alzheimer’s Disease Clinical Research Recruitment and Participation reflects the needs and ideas of the entire community.

After receiving your ideas, the NIA and stakeholder working groups will analyze and organize them. Your inputs will be evaluated and a national recruitment strategy document will be finalized over the next few months.

Your participation and ideas are valuable contributions to the development of a national strategy to guide and align the efforts of the many organizations engaged in this work.

Last Updated on April 29, 2020

Published by Raj C. Shah, MD

I am geriatrician and an Associate Professor in the Department of Family Medicine and the Rush Alzheimer's Disease Center.

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