For People with Dementia

Living with dementia can take time and adjustment and one might feel a range of emotions. Each person can experience these emotions differently.; A person in the younger onset Alzheimer’s disease support group from the Rush Alzheimer’s Disease Center said that for him “living with Alzheimer’s disease felt like sandpaper on his skin.” Another person stated that for her living with Alzheimer’s disease was like losing her autopilot and that tasks which once has been simple now took more thought.

Dementia does not typically progress quickly so there can be time to adjust. Another person from the same support group said that life for him was now “learning to live in a new groove.”

The resources below can be helpful as you learn to adjust to the changes from Alzheimer’s disease.

Recognizing the Symptoms

Being able to recognize the symptoms of dementia is not always easy. They can be slow to develop and it can take time to notice a pattern. Sometimes you might not recognize it in yourself but the people around you notice a problem.

Resources for Recognizing the Symptoms

Getting the Diagnosis

It is important to talk with your Doctor about the changes your and/or the people around you are seeing. Talking with a Doctor helps to learn what might be causing problems and if there is anything that can be done to help.

Resources for Getting the Diagnosis

Steps After Diagnosis

Listen to what others say about living with dementia.

Resources for Steps After Diagnosis

Sharing the Diagnosis

For many knowing when to share the diagnosis with others can be stressful. Some can worry how others will treat them and others can worry when is the right time. There can be a stress in keeping a secret and many report feeling better once they have talked with at least a few people.

Resources for Sharing the Diagnosis

Advanced Planning

When diagnosed with dementia, thinking about the future might feel overwhelming. Taking it a step at a time and talking with your family and others can help.

Resources on Advanced Planning

Finding a Support Group

Being able to meet with others who are experiencing the same issues can be comforting. Right now many groups are meeting on online, which allows people from all over to attend. Others groups meets in person. Take time to see what works best for you.

Resources on Finding a Support Group

Participating in Research

Finding ways to stay active and engaged while living with dementia has benefit. For some being active and staying involved means participating in research. There are many different types of research so talk with others about what fits for you. With being involved in studies, there could be benefit for you or for others living with dementia.

Resources on Participating in Research

Other Forms of Dementia

Most often when someone is showing the signs of dementia, it is from Alzheimer’s disease. There are, though, other forms of dementia that people experience. Each can look a bit different.

Frontotemporal Dementia

Resources on Frontotemporal Dementia

Lewy Body

Resources on Lewy Body Dementia

Primary Progressive Aphasia

Resources on Primary Progressive Aphasia

Vascular Dementia

Resources on Vascular Dementia