For Caregivers

Adjusting to being caregiver for someone with Alzheimer’s disease is a slow process. Alzheimer’s disease typically does not progress quickly so there can be time to adjust. It often takes the person with Alzheimer’s disease time to change and the same is true for the caregiver. One caregiver from the Rush Alzheimer’s Disease Center’s support group for younger onset Alzheimer’s disease, said that he felt caregiving was always responding to a change. It is not always possible to plan and know what might be coming next. What is needed can change over time

Recognizing Symptoms

It can take time to recognize the symptoms of Alzheimer’s disease and other forms of dementia.

Resources for Recognizing the Symptoms

Where to go for Diagnosis

At some point it will be good to talk with a physician about the symptoms that have been noticed. Beginning with your primary physician is often a good place to start. Moving to a specialist can also be helpful.

Resources for Where to go for Diagnosis

Steps After Diagnosis

Learning to adjust to the diagnosis can take time. There can be many aspects to consider from healthcare choices to financial planning to changes in daily routines. Taking each area in small steps is often the a good approach.

Resources for Steps After Diagnosis

Sharing the Diagnosis

Resources for Sharing the Diagnosis

Adjusting to Changes

Changes in Communication and Behaviors

Resources for Changes in Communication and Behaviors

Everyday Care

Resources for Everyday Care

Meaningful Activities

Resources for Meaningful Activities

Changes in Relationships

Resources for Changes in Relationships


Resources on Safety


Resources on Driving

Taking Care of Yourself

Resources of Caring for Yourself

Long Distance Caregiving

Resources for Long Distance Caregiving

For Children

Resources for Children

Using Resources

Resources for Using Resources

Being Involved in Research

Resources for Being Involved in Research

Financial Planning

Resources for Financial Planning

Advanced Planning

Resources on Advanced Planning

Support Groups

Resources on Support Groups

Other Forms of Dementia

Lewy Body

Lewy Body – From the Alzheimer’s Association

Lewy Body Booklet – From the National Institute on Aging

Understanding Lewy Body – From the National Institute on Aging

Lewy Body Dementia Association

Frontotemporal Dementia

General Information – From the Alzheimer’s Association

General information – From the National Institute on Aging

The Association of Frontotemporal Degeneration

Vascular Dementia

General Information – From the Alzheimer’s Association

Vascular Dementia – From the American Stroke Association