Finding a way to stay connected during this time of stress and social distancing.

During the spread of COVID-19 and the need for social distancing, we are all feeling more lonely and disconnected. If you are living with or caring for someone with dementia that feeling is even stronger. Both family members and healthcare staff are feeling this stress too.

We began #WordsOfComfort to bring us together and share words of support, advice and comfort as we move through this time. We hope these words of comfort help each of us to know that we are not alone.

Many of us struggle to know if we are communicating well with our loved ones and if they are able to understand the world around them. Sentences get reduced to a few words, and answers to questions are limited. Do they understand what we are asking?  Are they following what is on tv?  Can they read?

We were in the drive thru yesterday trying to communicate on what to order.  All of the sudden Diane points and says “Rice Pudding”. There was a hand written sign on the window pointing out the restaurant has pudding.  We used to love rice pudding together.

Enjoy the small, sweet things you share.

Roly has been with our family for two years. He does so much to help in the care of my husband Kevin and is part of our family. This shirt says it all!

“Some people live their whole life and wonder if they have ever made a difference in the world but a Caregiver doesn’t have that problem.”

I thought I could do everything by myself to care for my husband with Younger-Onset Alzheimer’s. I didn’t want to impose on people by asking for help. I’ve always been the person who supports others, not the recipient. When my husband had a significant medical event, I was very overwhelmed physically, emotionally, and financially. Family, friends, and co-workers jumped in to support us. I finally had to let go of the notion that I could take care of him myself, and learned how to ask for help. When I did, my burden was lessened. I find this quote by Cory Booker to be spot on: “Sometimes asking for help is the most meaningful example of self-reliance.”— from the poem “Sometimes” by U.S. Senator Cory Booker