Finding a way to stay connected during this time of stress and social distancing.

During the spread of COVID-19 and the need for social distancing, we are all feeling more lonely and disconnected. If you are living with or caring for someone with dementia that feeling is even stronger. Both family members and healthcare staff are feeling this stress too.

We began #WordsOfComfort to bring us together and share words of support, advice and comfort as we move through this time. We hope these words of comfort help each of us to know that we are not alone.

The support group meetings were a life-line to me as I was navigating the care of my late husband, who had early-onset Alzheimer’s. I remember another spouse saying her husband had recently gone on a special day-trip for Alzheimer’s patients. The spouse said, “He doesn’t remember the trip, but he had a good time.” I was completely baffled. Why did he bother to go on a trip that he did not remember? I soon realized that any enjoyable experience contributes to our well-being and is therefore beneficial. It’s like a good night’s sleep. We don’t remember it, but it does us good.

Roly has been with our family for two years. He does so much to help in the care of my husband Kevin and is part of our family. This shirt says it all!

“Some people live their whole life and wonder if they have ever made a difference in the world but a Caregiver doesn’t have that problem.”

I thought I could do everything by myself to care for my husband with Younger-Onset Alzheimer’s. I didn’t want to impose on people by asking for help. I’ve always been the person who supports others, not the recipient. When my husband had a significant medical event, I was very overwhelmed physically, emotionally, and financially. Family, friends, and co-workers jumped in to support us. I finally had to let go of the notion that I could take care of him myself, and learned how to ask for help. When I did, my burden was lessened. I find this quote by Cory Booker to be spot on: “Sometimes asking for help is the most meaningful example of self-reliance.”— from the poem “Sometimes” by U.S. Senator Cory Booker