Dementia Friends Illinois

Dementia Friends Illinois is the work in Illinois to support the Dementia Friends USA movement.  Dementia Friends USA is a global movement that is changing the way people think, act, and talk about dementia.  This page collects and shares resources to support the efforts of residents in Illinois to become part of the Dementia Friends USA movement.

Who

Dementia Friends Illinois is a grass-roots effort for community members to become aware of the steps they can take individually and collectively to improve the lived experience of persons with dementia and their support systems.

Dementia Friends Illinois is supported Illinois Cognitive Resources Network.  The Illinois Cognitive Resources Network (ICRN) is dedicated to making Illinois a national leader in the development and implementation of effective community-based models for adults to access research, education, training, and support services to promote cognitive health and quality of life  Member organizations of the Illinois Cognitive Resources Network include volunteer health advocacy organizations focused on dementia and Alzheimer’s Disease Assistance Centers along with Aging, Disability, and Public Health Networks in Illinois.  Some, but not all members, are listed on another page of this website.

Why

Please watch the following video clip on the Dementia Friends USA website:

https://dementiafriendsusa.org/

All too often, persons living with or at risk for dementia feel alone and unheard.  They feel left out from the activities in their community that promote well-being.  Dementia Friends Illinois in conjunction with Dementia Friendly Illinois is about reversing the narrative.

Developed by the Alzheimer’s Society in the United Kingdom, the Dementia Friends initiative helps everyone in a community understand what dementia is and how it affects people, each of us can make a difference for people touched by dementia.

Building Dementia Friends in Illinois is of significant importance to the families and persons living with or at risk for dementia.  Based on the 2017 Alzheimer’s Association Facts and Figures report, it is estimated that 220,000 people in Illinois have dementia due to Alzheimer’s disease and by 2025 the number will increase by 18% to 260,000 people.  If all the people with dementia lived in a single Illinois city, it would be the second largest after Chicago.  When we take into account that each person with dementia has multiple informal caregivers, another 588,000 persons living in Illinois are impacted by dementia.  Of course, all the people with dementia and their family do not live in a single community; they are living in every community in Illinois.  Every one of these individuals has to navigate through their communities to support the well-being of a person living with or at risk for dementia.  If they do not feel supported by their neighbors, they start becoming isolated.  Isolation leads to worsening well-being along with poor physical and mental health.

What

The key to building the Dementia Friends Illinois network is to engage as many community members as possible in Illinois to recognize how they can take simple steps to support persons living with or at risk for dementia and their families.

A Dementia Friend or Dementia Friends Champion is someone who has a better understanding of dementia; will know how to act more empathetically towards people with dementia in their communities and workplaces; and has committed to taking a practical action to help people with dementia, contributing to a dementia friendly community.

From telling friends about the Dementia Friends program to visiting someone you know living with dementia, every action counts.

When

The Illinois Cognitive Resources Network became the Dementia Friends State Champion for Dementia Friends Illinois in May 2017 when a sub-licensee agreement between Dementia Friendly America and Rush University Medical Center was executed.  The work for Dementia Friends Illinois is a continuous process with no anticipated end-date.

Where

Dementia Friendly Illinois wants to initially support the development of at least one Dementia Friends Champions in each of the 13 Planning Service Area in the State.  Then, Dementia Friendly Illinois want to expand so that multiple Dementia Friends Champions can be in each county in Illinois.   In large, urban areas of the State, having Dementia Friends Champions for each community/neighborhood will be developed.  The goal is to develop a stable network of Dementia Friends Champions who can facilitate constant training of residents interested in being Dementia Friends.

Illinois PSA

How

Online trainings

An interested community member also can join the Dementia Friends movement directly by viewing a series of online videos at Dementia Friends USA.  A community member watches an overview video that provides information about dementia, how to recognize the signs of dementia and simple actions to personally contribute to making his/her community dementia friendly.

Once an interested community member has watched the overview video in its entirety, he/she will be prompted to select one of seven sector specific video shorts.  In order to complete the Dementia Friends session, he/she needs to watch at least 3 video shorts that ideally are the sectors most relevant to his/her role in the community.  Once the overview and 3 video shorts are viewed, the interested community member will be able to register as a Dementia Friend.

In-person trainings

How the Dementia Friends USA program works is described in the flow diagram shown below.  Each State has a lead agency to house and develop Master Trainers.  In Illinois, the Master Trainers are part of the Illinois Cognitive Resources Network.  The Master Trainers then train Dementia Friend Champions.  Dementia Friend Champions then host information sessions with community members interested in becoming Dementia Friends.  Dementia Friends learn five key messages about dementia and choose actions to support persons living with dementia and their families to be included in community life.

Dementia Friends Process